Springtime has arrived in Western Colorado where I live. Besides prehistoric ruins, the area is known for The Great Sage Plains and high desert flora and fauna. Lots of plants are blooming. With camera in hand, I went for a hike. I decide to share. I’m especially thinking of those who still suffer from MD and associate symptoms.
My reentry into the Morgellons community was, I must admit, prompted to market a book I recently published. I don’t like the marketing aspects of being a writer, but how else will anybody know about your book? Forgive me for this. Maybe someday you’ll thank me?
A close friend who worked in marketing for Random House had gifted me a book on book selling some years ago. Candice died from cancer this past year. I felt she was with me though when I started considering how to get the word out on The Morgellons Pyramid. The biggest suggestion was to connect with those who will benefit from your book. So, I joined several Facebook groups dedicated to Morgellons Disease. So, there is my confession.
I like to blog. Sometimes I go for hikes with some topic in mind. I considered- What I Hope MD Sufferers will hear- as I hunted for desert flowers. Enjoy the flowers. Hear my messages.
- You can recover– I documented my recovery. “Hell and Back Again” was published in the medical journal Explore!. First in print in 2008 and available online since, it has been read by many. As I have made clear throughout my writing and research, I believe the symptoms from the MD spectrum are caused by mercury as a neurotoxin. Whatever you may believe the cause, if you go after mercury all else will clear out of your system. I do believe my recovery and others was possible by taking a toxins out, nutrients in approach to healing. It is functional medicine at its best which focuses on systemic optimization.
- The sensations and bodily-produced materials are real– The materials coming out of skin and orifices is very real. You know this. Confirmation via photos and descriptions are regularly posted. Symptom management is a common topic. I know in the thick of symptoms managing and confirmation are constantly in thoughts. The variation and individual symptoms experienced from the MD spectrum need further investigation. Just know, your symptoms are very much real.
- You are not alone– I know these symptoms and the general misunderstanding of this medical condition can leave you feel alone and isolated. You may have friends or family providing support. This is ideal. The online communities provide support. If you have a belief in a higher power, keep a prayerful and open spirit to the gifts life still has for you (when I was deep in symptoms, just hearing birds chirping or seeing spots of sunlight brought me some peace).
- In our current social environment, the primary message we need to present is- Morgellons Disease is real. I know it is tempting to simply focus on cause. I see this in online groups where participants have a pet theory on cause. I am known to be very vocal about my understanding of cause, so I understand why we share. The problem with today’s culture is Morgellons is still considered delusional by the majority. We need to change this! If we can get the world to understand MD as real, then we can focus on cause and cure. I think taking a grass roots approach may be the most effective. I called the local library today to see if I could arrange to present on MD along with promoting my book. I have been thinking of offering a brown bag presentation to the local hospital. I don’t know the best means of sharing on MD. Too often the mass media and even online sharing seems to have a political slant and people accordingly disregard the message. I think if the general public understood the various layers of MD, then we could have a shift in understanding. My book was largely created with this in mind.
Flowers in the spring are a sign. They signify an end to a long cold winter. They represent rebirth. They add beauty, color and hope. Maybe my photos and words bring inspiration. Maybe some peace. Nature has a way of bringing matters into balance. Take it in.
Walking in Beauty: Closing Prayer from the Navajo Way Blessing Ceremony
In beauty I walk
With beauty before me I walk
With beauty behind me I walk
With beauty above me I walk
With beauty around me I walk
It has become beauty again
Hózhóogo naasháa doo Shitsijí’ hózhóogo naasháa doo Shikéédéé hózhóogo naasháa doo Shideigi hózhóogo naasháa doo T’áá altso shinaagóó hózhóogo naasháa doo Hózhó náhásdlíí’ Hózhó náhásdlíí’ Hózhó náhásdlíí’ Hózhó náhásdlíí’
Today I will walk out, today everything negative will leave me
I will be as I was before, I will have a cool breeze over my body.
I will have a light body, I will be happy forever, nothing will hinder me.
I walk with beauty before me. I walk with beauty behind me.
I walk with beauty below me. I walk with beauty above me.
I walk with beauty around me. My words will be beautiful.
In beauty all day long may I walk.
Through the returning seasons, may I walk.
On the trail marked with pollen may I walk.
With dew about my feet, may I walk.
With beauty before me may I walk.
With beauty behind me may I walk.
With beauty below me may I walk.
With beauty above me may I walk.
With beauty all around me may I walk.
In old age wandering on a trail of beauty, lively, may I walk.
In old age wandering on a trail of beauty, living again, may I walk.
My words will be beautiful…
